Recently
I received a letter from one of our regular readers. As you read the
words in her note, think of how you might be the prize that someone is
looking for.
Dear
Mr. Kirwan:
I
am an avid reader of your column in the Vision Paper. You provide your
readers with many thought-provoking and inspirational messages. Your
words of wisdom always touch home.
I
am writing to ask for your assistance. My 3 ½ year old nephew in
Timmins has recently been diagnosed with a very rare disease called
Dyskeratosis Congenita and is in need of a bone marrow transplant.
I
have enclosed a letter I wrote one morning at 2 a.m. If you feel it is
worth publishing, perhaps it will encourage others to get tested as a
possible bone marrow donor and get added to the bone marrow registry.
Signed:
Monique Van Alphen
Dear
Monique:
Thank
you for your letter. I hope it inspires our readers and I hope your
nephew gets the bone marrow he needs.
What
I Need Is Worth More Than Your Weight In Gold...But Won’t Cost You A
Dime
by
Monique Van Alphen
“Just
Imagine” the feeling you would get knowing the difference you have
made...saving somebody’s life. It would truly be the “draw” of a
lifetime, “beating the odds” and holding the “winning
combination”!
With
the recent news of the two most recent lottery winners, a thought
occurred to me. As much as it would be nice to become an instant
millionaire, it would not change the journey my nephew, Luc is on. It
could not “buy” him a chance at life. You see, Luc needs a bone
marrow transplant and he needs it soon.
Every
day people across the province purchase a chance of “winning the
lottery” and most remain losers. Yet a “quick pick” (referring to
a simple blood sample) can make you an “Instant winner”. “Just
imagine the freedom” that a lucky person can have if you “match six
out of six”. Only the prize in this case is the life of the person
receiving your bone marrow donation. And there will always be two
winners - the recipient of the donation and the donor, knowing that
he/she saved another person’s life!
I
urge you all to please give Luc and others like him a “winning
chance”. Help him “beat the odds”. You could be the “one in a
million” to help him live a long and happy life that he so much
deserves.
I
thank Monique Van Alphen for helping us realize that we all have the
gift of life within us and we can all offer that gift to others. More
than six million people around the world have been tested and are on the
bone marrow registry. Testing requires a regular blood test which is
screened and sorted by typing to find the six (6) genes required for a
perfect match. There is a 60% chance that a compatible donor will be
found for Luc. After finding the donor, Luc faces six weeks of critical
care where he will receive chemotherapy, radiation and then the
transplant. That is followed by another five months of post-operative
recovery and observation to see if his body accepts the marrow.
So
as you can see, Luc’s family still faces many hurdles as they try to
prolong Luc’s life. The least we can do is get tested and have our
name placed on the registry so that Luc and all the rest of the Luc’s
with this disease can have some hope of survival.
If
you are between the ages of 17 and 59, and if you are interested in
joining the Unrelated Bone Marrow Donor Registry, contact the Canadian
Blood Services at 1-877-366-6717.
If
you want information on Luc’s condition, contact Monique Van Alphen at
969-7809.